Living Gluten Free

Posts tagged ‘Coeliac disease’

No Gluten Natural Girl Products


I thought I would show some of the products we offer at No Gluten Natural Girl Products, not only do we carry our own line of gluten-free, (some) vegan makeup but we also carry many other gluten-free products. We carry shampoo, conditioners, men’s products, body lotions, baby products, children products, outdoor products for your skin, hygiene products, snack items, environmentally safe for the home. We have something for everyone and we are always adding new items. The companies we work with are dedicated gluten-free facilities and we list all ingredients on our website.

http://www.noglutennaturalgirlproducts.com/

            

                   

                

                        

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Do you have a plan if you have been glutened? I do


So if you have Celiac Disease or you are gluten intolerant or sensitive and eating gluten by accident makes you ill you need to have a plan on what to do when and if this happens. Why? Well because anyone who has gone through this (ME) will tell you it hurts and it ruins your day or can ruin a couple of days. It’s physically exhausting and mentally draining because you don’t know how long it will last.

The first time I accidentally ate gluten after being gluten-free I thought I was going to die, the pain was horrible (spasms) not to mention the bathroom issues also. My husband called the doctor and I was told to go to the emergency room, why? First because I was newly diagnosed and he wanted to make sure there were not any other issues and second the pain was so bad they had to give me something stronger and something faster than a pill. Now I have only been glutened 3 times since 2010. The first time because I read a label wrong and the other 2 were because a restaurant said it was gluten-free and they didn’t take proper precautions and I had cross contamination issues.

So after the third time my Gastrologist  and I got together and came up with a plan. The first thing he did was give me a medication that works by decreasing the motion of the stomach and intestines along with the secretion of stomach fluids, including acid. Now everyone’s doctor is different and I am not going to put the medication I use in this blog. You should talk to your doctor about it if you think you need to have one on hand. I take this medication as soon as I feel that feeling I get when I know I have eaten something that has had gluten in it. These pills dissolve under the tongue and are easy to take. I also take something for the diarrhea, which unfortunately happens when you have ingested gluten accidentally. The other thing that we talked about was that I need to drink water during this time and a lot of it to flush it all out of my system. I don’t me a glass here and there I mean bottles here an there, drink, drink, drink until you think you can’t drink anymore and then drink some more.

Now there are some other natural remedies that you can find at a health food store and there are some that feel juicing or a cleansing can help as well. I have not tried any of these. I personally and it’s just me feel better talking to my doctor and taking his recommendations. I am very sensitive when it comes to gluten and I can get very sick with cross contamination issues. Everyone is different and everyone reacts differently. Check with your doctor please before you take anything over the counter especially if you are on other medications. You don’t want to have a medication react to something you take over the counter.

 

Gluten and Depression


I have read a lot of papers on this and although I never thought about it with myself back in the day but now if I look back I can see times where it makes sense about how I was feeling. Was I depressed because I suffering from Celiacs and didn’t know it  and I was reacting to gluten? could be. I also did this because a friend of mine was just diagnosed with depression, she went to another doctor for stomach issues only to find out she has Celiac Disease, so she had a lot of questions about it also.

I have read several paper by Dr. Vikki Petersen and I might even have one of her videos on my site as well. I like the way she explains things, not to formal so you sit there and shake your head and say What? but she explains in a way that your Oh I get it.

So here it goes. After the digestive tract, the most commonly affected system to be affected by gluten is our nervous system, makes sense right (I thought it did). Gluten sensitive people immune systems responds to the protein gliadin. Gliadin is a protein found in wheat. This protein is similar in structure to other proteins present in our bodies, including those in the brain and nerve cells. The immune system “confuses” proteins in the body for the protein gliadin. So they call this mimicry, the result is that the body attacks itself and inflammation occurs. When inflammation happens in the brain and nervous system, a variety of symptoms can occur, including depression.

There was a study done and 15 patients with untreated celiac disease were compared to 15 patients treated with a gluten-free diet for a year. In the untreated group, 73% had abnormalities in brain circulation while only 7% in the treated group showed any abnormalities. The patients with the brain circulation problems were frequently suffering from anxiety and depression as well.

Researchers look at the association between gluten sensitivity and its interference with protein absorption as well. Tryptophan is a protein in the brain responsible for a feeling of well-being and relaxation. A deficiency can be connected to feelings of depression and anxiety.

10 medications, 3 doctors and a partridge in a pear tree.


So those of you that follow me know that I have Celiac, Sjogren’s Syndrome, Fibromyalgia and Alopecia. All my doctors know of each other and they are all given what medications each of them give me  just in case one doesn’t work with another. Well a new doctors in town and my new Rheumatologist thinks I do not have Alopecia or Fibromyalgia. She feels I have a form of Lupus instead, which can also mimic Fibromyalgia and Alopecia. So next month doctor 4 a Dermatologists from the University of Illinois Hospital will do a biopsy of my scalp, yep my scalp. I wrote about needing a wig sometime ago because I have a bald spot. So if it comes out lupus then I no longer will be diagnosed with Fibromyalgia and Alopecia. YEAH !!! I guess? Still may need a wig or a small hair piece.

Doctors appointments, keeping track of all these med’s. Really!!!, when will I feel better? No one can tell me, I saw 2 my 3 doctors today. More medication for another month, then if things are not better we should think about sending you to the Mayo Clinic, really!!! This sucks. I thought after I was diagnosed and going gluten-free that I would feel great, everyone else seems to say they feel wonderful.  Although I am better I still have several issues that haven’t cleared up. More med’s to help but I am literally taken more medication then my grandmother did (I miss her) I learned today that there is a form of Celiac Disease which is called Nonresponsive CD. The prevalence of nonresponsive CD is unknown (Uggg) Even eating gluten-free may not help, that sucks.

When is enough enough? I don’t know. It could be worse, I know that. I just needed to vent and I thank you for giving me the opportunity to do that. If you need to vent let me know I am a great listener.

Today is Celiac Awareness Day


Here are some stats courtesy of University of Chicago Celiac Disease Center Fact Sheets.

Celiac is most common genetic autoimmune disease in the world? Really and the fact that it took me getting so sick that I was finally diagnosed is sad according to the stats.  Celiac compared to some other diseases: at least 3 million have celiac, 3M have Type 1 diabetes, 2.7M have epilepsy, 2.1M have rheumatoid arthritis, 1.5M have lupus, .5M have Crohn’s, 1M have Parkinson’s, 400K have MS. Those with celiac would fill up 4,400 Boeing 747s or 936 cruise ships. Celiac is very common, but not commonly diagnosed. Don’t you think this is sad because I certainly think it is.

Just in case you don’t know. The disease affects the digestive process of the small intestine and is triggered by the consumption of gluten–a protein found in wheat, barley and rye.  Celiac Disease causes an abnormal response to gluten ingestion: the immune system attacks the small intestine, inhibiting the absorption of important nutrients, destroying the intestinal villi and wreaking havoc on the bodies systems.

I have heard from many people who have been told by their insurance that they will not cover them now that they were diagnosed and I also have heard from people that they have been told “No” on  life insurance because of being diagnosed. Now I have never had an issue with insurance or life insurance so I feel very lucky. Then I started thinking  isn’t that what you pay all your premiums for? Anyway that is a whole other subject that I wont get into now.

The University of Chicago has wonderful information on their website. And here is a link to the e-book they offer.

http://www.celiacdisease.net/assets/documents/Jump_Start_Your_Gluten-Free_Diet__5_20_2011.pdf

My friend said “Oh gluten free is so popular now” Really, she is lucky I love her.


Complaints of Celiac Disease are on the rise in the United States.  A friend of mine said to me it must be getting popular to go gluten-free, she saw a show where Hollywood A lister’s were saying how going gluten-free helped them shed pounds. Are you kidding me!!!. Let me just say that I didn’t choose to go gluten-free and yes if you eliminate pastas and bread from a normal diet and eat more fruits and veggies you will lose weight. Lord, what is wrong with people.  For those of us who have Celiac Disease (me)  it hurts, it makes us sick and to be frank “It sucks”.

Celiac disease is an inherited (Yes, mother it is) autoimmune disorder that causes the body’s immune system to attack the small intestine, it interferes with proper digestion and absorption of nutrients. So I am reading these articles and it says that because so many people have it now researchers are trying to figure out why. ??????  Then as I read on they called it a trend. There is another theory that involves improvements in sanitation and hygiene and it said that industrialized countries are more at risk for celiac disease because their bodies have not had to fight off as many diseases. My head hurts now and I am not reading any more of these articles or I may hurt someone.

This is why I think it is on the rise (ready) now I am 50 so back in the day we ate different. My gamma made food from scratch, we ate veggies we grew in our back yard and McDonald’s was only if you were lucky or it was your birthday. We eat in my opinion too much processed foods which contains gluten in it,  HELLO !!!!.  Another reason why more and more people are being diagnosed is because doctors are more aware of the disease and look at symptoms differently than years ago. Oh and there is the little thing about the gene they found that I mentioned early.

So this is what Dr Murray who works at the Mayo Clinic stated in an article (yes I read 1 more) about Celiac Disease and it isn’t far off  of what I just stated. He states “Another potential culprit is the 21st century diet”. Although overall wheat consumption hasn’t increased, the ways wheat is processed and eaten have changed dramatically. “Many of the processed foods we eat were not in existence 50 years ago,” Dr. Murray says. Modern wheat also differs from older strains because of hybridization.

So if you ask anyone that has Celiac Disease if  they think this trend will go away or if you ask  if you eat gluten-free to lose weight watch out because you might just get slapped upside your head. Really people, Celiac Disease is not a trend and it is not a choice, trust me I wouldn’t have picked this at all, I’m just saying.

By George I Think They Got It :)


This holiday weekend our house was the house. we had guests everyday. Saturday we had my husbands manager and his family over. We have had them over before and they are great people to hang out with, this time they insisted in bringing the main course. They were so concerned about what they were making because they know I have Celiac Disease. They didn’t even season any of the items until they got to my home to make sure the ingredients were ok for me. Now this guy make the best Ceaser Salad ever and he made sure that the dressing was ok and that croutons were not added and put on the side. It was wonderful, one day down and nothing but fun and swimming in the sun. No stomach ache, nothing YEAH.

Day two Sunday, my turn to cook, two of our children came home, the one that didn’t was here the night before . So burgers and hotdogs, chips and dips your basic things. YEAH another day and nothing but fun and swimming in the sun. Could I do it for a third day ? Yes I can.  Monday came and my in-laws and friends and number 2 son (who spent the night) and his girlfriend and her cute little girl came by. My father in law brought the food (Filets his favorite), my friends called a head of time and asked what they could bring that I could eat. It was another day of fun and swimming in the sun.

So finally after a year and a half most of my friends and family have figured out what I can eat and can’t eat, but alas my dear husband sat after everyone was gone Monday and as he is eating a doughnut he turned to me and said “Want a bi…. shit, I’m sorry baby. Yikes, really, you have got to be kidding me. LOL