So those of you that follow me know that I have Celiac, Sjogren’s Syndrome, Fibromyalgia and Alopecia. All my doctors know of each other and they are all given what medications each of them give me just in case one doesn’t work with another. Well a new doctors in town and my new Rheumatologist thinks I do not have Alopecia or Fibromyalgia. She feels I have a form of Lupus instead, which can also mimic Fibromyalgia and Alopecia. So next month doctor 4 a Dermatologists from the University of Illinois Hospital will do a biopsy of my scalp, yep my scalp. I wrote about needing a wig sometime ago because I have a bald spot. So if it comes out lupus then I no longer will be diagnosed with Fibromyalgia and Alopecia. YEAH !!! I guess? Still may need a wig or a small hair piece.
Doctors appointments, keeping track of all these med’s. Really!!!, when will I feel better? No one can tell me, I saw 2 my 3 doctors today. More medication for another month, then if things are not better we should think about sending you to the Mayo Clinic, really!!! This sucks. I thought after I was diagnosed and going gluten-free that I would feel great, everyone else seems to say they feel wonderful. Although I am better I still have several issues that haven’t cleared up. More med’s to help but I am literally taken more medication then my grandmother did (I miss her) I learned today that there is a form of Celiac Disease which is called Nonresponsive CD. The prevalence of nonresponsive CD is unknown (Uggg) Even eating gluten-free may not help, that sucks.
When is enough enough? I don’t know. It could be worse, I know that. I just needed to vent and I thank you for giving me the opportunity to do that. If you need to vent let me know I am a great listener.